Anthony Carbajal, ALS Ice Bucket Challenge creator, has recently posted a video health update. Carbajal is now struggling with advanced-stage ALS and appealed to his Internet followers to help him avoid resorting to hospice care.
Who is Anthony Carbajal?
Anthony Carbajal is 32 years-old and lives in Redlands, California. He was diagnosed with ALS on 27 January 2014, at the age of 26, and has documented his journey with ALS on his YouTube channel.
ALS runs in Anthony’s family – his grandmother and mother were both diagnosed with the disease. After graduating in 2010 from Loyola Marymount University in Los Angeles, he returned home to care for his mother.
Anthony started a wedding photography business after graduation, but his diagnosis with ALS caused him to gradually lose strength in his hands, arms, and shoulders. This made it difficult for him to continue photographing weddings.
Anthony married his girlfriend Laarne Palec in a private ceremony in November 2014.
Recently, he posted a video to YouTube talking about how his ALS has progressed from his diagnosis to now.
Starting with mild symptoms, Anthony is now wheelchair-bound and has only a severely limited range of motion.
The ALS Ice Bucket Challenge
In 2014, the same year Anthony Carbajal was diagnosed with ALS, the ALS Ice Bucket Challenge became a social media sensation. Anthony’s video quickly grew to be one of the most viewed, with 17 million hits and still counting.
The ALS Ice Bucket Challenge raised over $115 million in total donations.
Despite his diagnosis, Anthony still keeps up his spirits. He’s running a street photography for beginners course on Udemy and is still taking photos himself.
He has modified his wheelchair (that he calls Frankie, short for Frankenstein) to allow him to take photos easier and continue his passion for photography.
On his photography work, Anthony says: “I aim my lens at the mistakenly overlooked…Embracing and encouraging vulnerability as a means for solidarity.”
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